On Tuesday my research nurse, Sally, told me that my Geiger number would not be down to 2 until 8pm on Wednesday (the day I was scheduled to get my stem cells back). She also told me that the type of transplant I'm getting (auto) is not done at night therefore I would get my cells back on Thursday. Since then I have asked the doctor and several nurses if we were going to set back the day to start chemo to Sunday instead of Saturday so that I would not have two days rest between the chemo and the transplant. They have told me repeatedly that this is not a big deal and the chemo would take place tomorrow and Monday as planned with my cells being returned on Thursday. So mentally, I've geared up to get this thing moving tomorrow - then my nurse for today informs me at about 6pm that the orders have been changed and the chemo won't start until Sunday! I'm frustrated that it took that long for them to decide this and for them to tell me. I'm bored as can be and tired of sitting around - that's not me! I go for walks now that I am free but the halls are getting pretty old. Marc came and I got to hug him and I could have done that forever. Deb came to visit and we enjoyed a lengthy chat. It was a good time and made the afternoon disappear. I want to get this thing going!!!
Hi Judy,
ReplyDeleteWhen I asked about you recently, Carla gave me your blog address. What a cool job you've done! I haven't had a chance to read through it, but it sounds like you're ready to get your cells this Thursday. Yippee! I've been thinking of you, and now I have your blog set to open when I sign on, so remember "I'll be watching you." Good luck in the days ahead. -- Shelley V.